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Publication Type
Conference Proceedings
UWI Author(s)
Author, Analytic
Daley,Camille Alexa
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Paper/Section Title
Against the Odds: An Examination of the Factors which Hinder the Completion of Secondary School by Children with Sickle Cell Disease in Jamaica
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Proceedings Title
Promoting Child Rights Through Research : Caribbean Child Research Conference
Date of Meeting
October 23-24, 2007
Place of Meeting
Jamaica Conference Center, Kingston, Jamaica
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Abstract
This study focuses on the situation of Jamaican children with sickle cell disease and the challenges they face in completing secondary education. Sickle cell disease (SCD) is the most common genetic disorder in the world, and one in every 150 children born in Jamaica has a form of SCD. The condition is more severe during a childís formative years causing frequent bouts of absence from primary and secondary school. Consequently persons with sickle cell disease are at greater risk of not completing their schooling and suffering social and economic marginalization. The study examines the impact of several sociological and physiological variables on the successful completion of secondary education by persons with SCD in Jamaica. Preliminary findings indicate that secondary school students with sickle cell disease are performing below the national average in terms of the numbers of patients who sit the school leaving Caribbean Secondary Examinations Certificate (CSEC). Being severely affected by sickle cell disease, being raised in a single parent home, coming from a working class or poor background and not attending a traditional high school are all associated with an increased risk of not taking the CSEC examination. This study relies on data collected during face-to-face interviews with a random sample of patients on register at the islandís only Sickle Cell Clinic in 2007. It helps to fill the current void in the literature and sheds light on the social reality of persons who suffer from this highly stigmatized and isolating illness.....
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